Kidney Week

Abstract: SA-PO950

"Survival after Listing": A Metric That Helps Transplant Patients Compare Different Transplant Centers

Session Information

• Transplantation: Clinical - 3
  October 26, 2024 | Location: Exhibit Hall, Convention Center
  Abstract Time: 10:00 AM - 12:00 PM

Category: Transplantation

• 2102 Transplantation: Clinical

Authors

• Lozano, Cinthia, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Cinthia Lozano, PhD

• Mckinney, Warren T., Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Warren T. Mckinney, PhD

• Vazquez Loyola, Lucero Victoria, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Lucero Victoria Vazquez Loyola

• Schaffhausen, Cory, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Cory Schaffhausen, PhD

• Schladt, David P., Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

David P. Schladt, MS

• Snyder, Jon J., Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Jon J. Snyder, PhD

• Matas, Arthur J., University of Minnesota Twin Cities, Minneapolis, Minnesota, United States

Arthur J. Matas, MD

• Israni, Ajay K., Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States

Ajay K. Israni, MD, MS

Background

Previous research has found that using reports to make informed decisions involves processing a large amount of information, which challenges the decision-making process. The Transplant Center Search (TCS) tool was developed to provide patients with comparative information about transplant centers to support decision making on center selection (www.transplantcentersearch.org). To reduce patients’ cognitive efforts, we are developing TCS prototypes with a new metric, “survival after listing” which incorporates the current metrics and assesses survival among waitlisted candidates and recipients as provided by the Scientific Registry of Transplant Recipients (SRTR).

Methods

We gathered qualitative data from local kidney transplant candidates. Participants evaluated mockups of the TCS site (Figure 1), including different labels and definitions describing the new metric. Participants were asked to share their impressions of how useful the new metric would be for decision making.

Results

15 kidney transplant candidates were enrolled in the study with the following characteristics: 60% female, median age 58 (SD 7.4), 60% White and 26.7% Black. 13.3% of participants reported needing assistance interpreting printed health materials. Feedback from candidates was generally positive and shows that the new metric supports distinguishing between centers. They also suggested that TCS should continue to provide the current metrics to facilitate decision making (Table 1).

Conclusion

Efforts to reduce the complexity of comparative information on transplant programs are supported by patients. Survival after listing, provides a singular measure of comparative survival among candidates and recipients. We are recruiting national kidney transplant recipients and patients from other solid organ groups to further refine the presentation of the new metric.