Kidney Health Advocacy
A Message From ASN President Prabir Roy-Chaudhury, MD, PhD, FASN
Dear Colleague:
Thank you for being a member of the American Society of Nephrology (ASN). Representing your dedication, expertise, and commitment to kidney health is an honor and privilege.
As federal policies continue to evolve, ASN remains steadfast in its mission to promote kidney health and always do what is in the best interests of the millions of people living with kidney diseases. ASN is championing the values of excellence, innovation, and community support while leveraging its extensive policy resources, coalition partnerships, and relationships with the legislative and executive (which includes regulatory) branches of the US government (including with members of Congress) to advocate for policies that support people living with kidney diseases, health professionals, and researchers.
ASN is actively implementing several key initiatives to support the kidney community, including:
- Podcast on Executive Orders and ASN's Response - ASN will release a podcast outlining its response to recent Executive Orders and directives, discussing their impact on kidney care and ASN's advocacy efforts.
- Dedicated Webpage with Key Advocacy Resources - ASN is developing a new webpage compiling essential advocacy resources, including letters, statements, and coalition communications. It is very important for me personally to 1) communicate the changes that affect all of us and our patients in real time as well as 2) have a way to channel your understanding, expertise, and engagement in a positive manner for the larger kidney community.
- Joint Action with Like-Minded Coalitions - ASN continues to collaborate with coalition partners to amplify concerns and advocate for policies that advance kidney care, research, and education. For example, ASN most recently signed onto letters initiated by Research!America and the Ad Hoc Group for Medical Research Funding.
- 2025 Legislative and Regulatory Priorities - ASN's four policy-focused committees (ASN Health Care Justice Committee, Policy and Advocacy Committee, Quality Committee, and Transplant Policy Committee) are responsible for accomplishing the society's legislative and regulatory goals in 2025. These goals focus on starting earlier to prevent, diagnose, and treat kidney diseases; transforming transplant to expand access to the optimal therapy; and accelerating research, discovery, and innovation to advance American kidney health.
- ASN Annual Spring Hill Day on March 19, 2025 - ASN will interact with key legislators and committees on Capitol Hill, calling for reforms and investments to ensure every American has access to optimal kidney care, including engaging with bipartisan, bicameral Congressional champions of kidney health and transplantation.
- Ongoing Policy Communications via ASN Policy Insider - ASN will continue providing regular updates on federal policy developments through ASN Policy Insider, our monthly policy briefing newsletter.
ASN's commitment to excellence in patient care, scientific advancements, and medical education remains unwavering, and the society will continue to advocate for policies that support people living with kidney diseases, health professionals, and researchers. As ASN President, I thank you for your commitment to kidney health and urge you to stay informed, share your insights, and participate in the discussions and initiatives that are shaping the policies that will impact our field.
Again, thank you. If you have any questions about current federal policy or how ASN can support you, please contact ASN at policy@asn-online.org.
Sincerely,
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Prabir Roy-Chaudhury, MD, PhD, FASN
President
Advocating for Transformative Change
ASN—both individually and as a member of healthcare, medical, and scientific coalitions—routinely engages Congress and the Trump Administration, advocating for policies to create transformative changes in kidney health. ASN relies on its Health Care Justice Committee, Policy and Advocacy Committee, Quality Committee, and Transplant Policy Committee when formulating, prioritizing, and accomplishing annual policy priorities. A summary of ASN's most recent advocacy efforts follows—including for fiscal year (FY) 2025 kidney health research—in reverse chronological order.
Kidney Health Advocacy Efforts
2025
March 3, 2025
Agency for Healthcare Research and Quality
ASN calls on Congress to fully fund AHRQ at $500 million for FY 2026.
Read more »
March 3, 2025
February 25, 2025
National Institutes of Health (NIH)
ASN urges Congress to provide at least $1.77 billion increase for NIH in the FY 2025 appropriations package and preserve existing protections against cuts to reimbursement for NIH grantee Facilities and Administrative costs.
Read more »
February 5, 2025
Expansion of Oral Health Coverage for DKD Patients
After CMS expanded oral health coverage for kidney failure patients in last year's ESRD Prospective Payment System (PPS) and Quality Incentive Program (QIP) final rule, ASN urges CMS extend this coverage to patients with diabetic kidney disease.
Read more »
February 5, 2025
February 4, 2025
CMS Medicare Advantage Policy and Technical Changes Proposed Rule
ASN submits comments in response to the public comment period for CMS-4208-P: Contract Year 2026 Policy and Technical Changes to the Medicare Advantage Program, Medicare Prescription Drug Benefit Program, Medicare Cost Plan Program, and Programs of All-Inclusive Care for the Elderly.
Read more »
February 3, 2025
National Institutes of Health (NIH)
ASN advocates Congress to increase federal investment in NIH supported research and provide at least $48 billion for NIH in FY 2025.
Read more »
February 3, 2025
January 28, 2025
ASN President Highlights Advocacy Commitment
ASN President Prabir Roy-Chaudhury, MD, PhD, FASN highlights ASN's commitment to advocating for policies that create transformative changes in kidney health.
Read more »
January 15, 2025
OSHA Heat Injury and Prevention Standard
ASN urges the Occupational Safety and Health Administration finalize and implement its new heat injury and prevention standard, due to the link between occupational heat exposure and the development of serious medical issues including to the kidney.
Read more »
January 15, 2025
January 14, 2025
Congressional Hill Day
ASN develops its annual policy priorities to advocate for during its March 2025 Congressional Hill Day.
Read more »
January 3, 2025
Improving HHS Pre-waitlisting Data Collection
ASN supports HHS's proposal to collect data on "black box" between referral for kidney transplant and waitlisting but urges crucial steps to minimize burden on transplant centers.
Read more »
January 3, 2025
2024
December 20, 2024
PQM Fall Measures Under Consideration
ASN submits comments in response to Battelle's Partnership for Quality Measurement (PQM) Fall 2024 Measures Under Consideration Cycle.
Read more »
December 2, 2024
NIH and NIDDK
ASN requests Congress complete the FY 2025 Labor-HHS funding bill and provide $48 billion in NIH funding and $2.31 billion for NIDDK funding.
Read more »
December 2, 2024
November 18, 2024
NIH and Advanced Research Projects Agency for Health
ASN urges Congress to provide no less than $48 billion for base funding for the NIH, as well as funding for the Advanced Research Projects Agency for Health, in the FY 2025 Labor-HHS spending bill by the end of the calendar year.
Read more »
September 6, 2024
NIH and NIDDK
ASN asks Congress to include at least $48 billion in funding to the NIH and a proportional increase to NIDDK in FY 2025.
Read more »
September 6, 2024
Additional Advocacy Resources
February 2025: How Trump's Medical Research Cuts Would Hit Colleges and Hospitals in Every State (New York Times).
Council on Governmental Relations Facilities and Administrative Cost Reimbursement Advocacy Materials.
Association of American Medical Colleges Advocacy Resources on Facilities & Administrative (F&A) Costs:
- A fact sheet outlining key messages and a frequently asked questions overview.
- A comparison of foundations' support for F&A to government support.
- An infographic illustrating what types of expenses are and are not supported by F&A reimbursement.
January 2025: Research!America releases results of national survey showing Americans want President and Congress to assign higher priority to medical progress.