Abstract: SA-PO474
Caregiver Support on Tablo Home Hemodialysis
Session Information
- Home Dialysis - 2
October 26, 2024 | Location: Exhibit Hall, Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Dialysis
- 802 Dialysis: Home Dialysis and Peritoneal Dialysis
Authors
- D'Alessandri-Silva, Cynthia J., Outset Medical, San Jose, California, United States
- Gunter, Christopher, Outset Medical, San Jose, California, United States
- Aragon, Michael A., Outset Medical, San Jose, California, United States
- Henner, David E., Bershire Medical, Pittsfield, Massachusetts, United States
Background
The treatment of End-Stage Renal Disease (ESRD) at home can significantly impact daily activities and health-related quality of life (QOL) for patients. With home hemodialysis (HHD), care partners often share in the physical, mental, and social burden of self-care at home. Understanding and quantifying that burden provides opportunity to create technology and develop resources to better support patients and families performing home hemodialysis.
Methods
The HOME Registry Study (NCT04526301) is an ongoing multi-center, prospective, single-arm study investigating clinical and QOL outcomes on patients receiving HHD with the Tablo® Hemodialysis System (Tablo). In this interim analysis, the Care Partner-Net Promotor Score (NPS), Care Partner-Post Training Questionnaire, and Zarit Burden Interview (ZBI) were analyzed to quantify the impact of Tablo training on the care partner's perception of readiness and QOL once home assisting with treatment.
Results
Ninety-nine participants were enrolled into the HOME Registry Study, mean age 57, 73% male, 78% non-Hispanic/Latino, with 70% married or in a domestic relationship, and 50 care partners reporting at baseline.
Of care partner responses after completing training, 96% agree or strongly agree with “being satisfied with Tablo training received”, 98% agree or strongly agree they are “confident in supporting my partner’s dialysis treatment with Tablo System”, and 100% of care partners agree or strongly agree with being "satisfied with what is being asked of them as a care partner".
At month 12, 100% of responses reported: Sometimes, Rarely, or Never “feeling stressed between caring for their relative and meeting my own responsibilities” and to “feeling that I've lost control of my life since my relatives’ sickness”. In addition, 89% reported: Sometimes, Rarely, or Never "feeling I don't have enough time for myself due to my relative's HHD”.
Mean care partner NPS at month 12, reported on a 10 point scale from 1 “not at all likely” to 10 “extremely likely”, was 8.94 at month-6 and 8.90 at month-12.
Conclusion
Care partners surveyed in the HOME Registry study report confidence in their training and their ability to care for their loved one with little impact on their own QOL. In addition, based on their experience, care partners of patients on Tablo at home were very likely to recommend Tablo HHD to others.