Kidney Week

Abstract: PUB083

The Kidney Mobile Health Registry: A Digital Research Approach

Session Information

• Publication Only

Category: Augmented Intelligence, Digital Health, and Data Science

• 300 Augmented Intelligence, Digital Health, and Data Science

Authors

• Salmon, Eloise, University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Eloise Salmon, MD

• Rahimi, Ashley E., University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Ashley E. Rahimi, MS

• Scherr, Rebecca, University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Rebecca Scherr, MA

• Arbit, Michael, University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Michael Arbit

• Creguer, Tina, University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Tina Creguer

• Desmond, Hailey, University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Hailey Desmond, MS

• Smith, Abigail R., Northwestern University Feinberg School of Medicine, Chicago, Illinois, United States

Abigail R. Smith, PhD

• Massengill, Susan F., Levine Children's Hospital, Charlotte, North Carolina, United States

Susan F. Massengill, MD

• Modi, Zubin J., University of Michigan Michigan Medicine, Ann Arbor, Michigan, United States

Zubin J. Modi, MD, MS

Background

Mobile health (mHealth) technologies offer a novel approach to research and data collection. Despite mHealth use in other chronic disease states, kidney focused initiatives are limited. The Kidney Mobile Health Registry is designed to assess the feasibility of mHealth use in targeted kidney disease study populations.

Methods

Three observational cohort studies were selected as pilots for the mobile registry (Figure 1). The registry was built in collaboration with CareEvolution (Ann Arbor, MI) and is offered via the MyDataHelps (MDH) application. Individuals are invited to participate or can enroll independently, consenting electronically within MDH. Enrollment is uncapped and includes both children and adults.

Results

The studies were moved to production following beta testing in a phased approach. All studies have launched as of March 2024, with recruitment to date detailed in Figure 2.

Conclusion

MHealth offers a novel research and disease management approach. Further exploration of recruitment, retention, and engagement strategies specific to kidney disease populations are needed.

Figure 1. Registry Structure

Figure 2. Registry Consort

Funding

• NIDDK Support