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Abstract: TH-PO667

Lupus Navigator Program: Pilot

Session Information

Category: Glomerular Diseases

  • 1402 Glomerular Diseases: Clinical, Outcomes, and Therapeutics

Authors

  • Geara, Abdallah Sassine, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Nogueira De Sa, Patricia, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Wirtshafter, Stephanie, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Ergin, Aylin, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Kancherla, Pranav S., University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Ryu, Faith, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Verma, Himanshi, University of Pennsylvania, Philadelphia, Pennsylvania, United States
  • Dequattro, Kimberly, University of Pennsylvania, Philadelphia, Pennsylvania, United States
Background

SLE disproportionally affects individuals from racial and ethnic minority groups with more than 95% of patients reporting social determinants of health (SDOH) challenges

Methods

We developed a Lupus Navigator Program in an outpatient clinic with 3 phases:
1. Referral: patients identified by the treating physician as having high SDOH challenges based on medical history, compliance, social setting
2. Screening: SDOH survey by volunteer college students
3. Intervention: Medical team implemented an patient-tailored plan

Results

Patients were mainly young black women
The top 3 SDOH: visit copays, help with adherence and transportation.
The primary SDOH were: transportation, visit copays, and health system navigation.
The table summarise the different interventions

Conclusion

This pilot Lupus Navigator Program demonstrated high SODH challenges among individuals with SLE/LN. the next step is to administer this program by a dedicated SLE social worker

SODH surveys
Demographics (N=28)  
Age (years)33 (19-56) 
GenderFemale24
EthnicityBlack
Hispanic
25
2
Disease StatusLN
LN Acute flare
24
14
   
SODHReportedThe Primary Need
Visit Copay154
Compliance151
Medication Copay121
Transportation134
Support group101
Medical Supplies100
Health system Navigation84
Housing72
Social Services70
Disease Education71
Mental health70
Food Insecurity31
   
 Interventions 
Direct financial help20 
Referral to social services19 
Medical supplies12 
Referral for SLE education or support group10 
   
   
   

Funding

  • Commercial Support – Aurinia