Abstract: TH-PO667
Lupus Navigator Program: Pilot
Session Information
- Lupus Nephritis: Clinical, Outcomes, and Therapeutics
October 24, 2024 | Location: Exhibit Hall, Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Glomerular Diseases
- 1402 Glomerular Diseases: Clinical, Outcomes, and Therapeutics
Authors
- Geara, Abdallah Sassine, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Nogueira De Sa, Patricia, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Wirtshafter, Stephanie, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Ergin, Aylin, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Kancherla, Pranav S., University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Ryu, Faith, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Verma, Himanshi, University of Pennsylvania, Philadelphia, Pennsylvania, United States
- Dequattro, Kimberly, University of Pennsylvania, Philadelphia, Pennsylvania, United States
Background
SLE disproportionally affects individuals from racial and ethnic minority groups with more than 95% of patients reporting social determinants of health (SDOH) challenges
Methods
We developed a Lupus Navigator Program in an outpatient clinic with 3 phases:
1. Referral: patients identified by the treating physician as having high SDOH challenges based on medical history, compliance, social setting
2. Screening: SDOH survey by volunteer college students
3. Intervention: Medical team implemented an patient-tailored plan
Results
Patients were mainly young black women
The top 3 SDOH: visit copays, help with adherence and transportation.
The primary SDOH were: transportation, visit copays, and health system navigation.
The table summarise the different interventions
Conclusion
This pilot Lupus Navigator Program demonstrated high SODH challenges among individuals with SLE/LN. the next step is to administer this program by a dedicated SLE social worker
SODH surveys
Demographics (N=28) | ||
Age (years) | 33 (19-56) | |
Gender | Female | 24 |
Ethnicity | Black Hispanic | 25 2 |
Disease Status | LN LN Acute flare | 24 14 |
SODH | Reported | The Primary Need |
Visit Copay | 15 | 4 |
Compliance | 15 | 1 |
Medication Copay | 12 | 1 |
Transportation | 13 | 4 |
Support group | 10 | 1 |
Medical Supplies | 10 | 0 |
Health system Navigation | 8 | 4 |
Housing | 7 | 2 |
Social Services | 7 | 0 |
Disease Education | 7 | 1 |
Mental health | 7 | 0 |
Food Insecurity | 3 | 1 |
Interventions | ||
Direct financial help | 20 | |
Referral to social services | 19 | |
Medical supplies | 12 | |
Referral for SLE education or support group | 10 | |
Funding
- Commercial Support – Aurinia