Abstract: PUB273
Assessing Global and National Trends in Public Awareness and Interest in Polycystic Kidney Disease, 2004-2024
Session Information
Category: Genetic Diseases of the Kidneys
- 1201 Genetic Diseases of the Kidneys: Cystic
Authors
- Pham, Justin, Mayo Clinic College of Medicine and Science, Rochester, Minnesota, United States
- Thongprayoon, Charat, Mayo Clinic Minnesota, Rochester, Minnesota, United States
- Miao, Jing, Mayo Clinic Minnesota, Rochester, Minnesota, United States
- Craici, Iasmina, Mayo Clinic Minnesota, Rochester, Minnesota, United States
- Cheungpasitporn, Wisit, Mayo Clinic Minnesota, Rochester, Minnesota, United States
Background
Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of numerous renal cysts that can lead to worsening kidney function and varios sequelae. Recent advancements in treatment options have made it possible to slow disease progression. In this context, public interest and awareness of PKD play a crucial role in early diagnosis, timely management, and support for affected individuals and their families. This study aims to analyze the trends in global and national public interest and awareness of PKD.
Methods
We conducted a comprehensive analysis of Google Trends data for the search term "polycystic kidney disease" over a period of 245 months, from January 2004 to May 2024. The worldwide trend was examined, along with specific data from the United States. The relative search volume was used as a measure of public interest, with the peak interest assigned a score of 100.
Results
The global highest public interest in PKD was observed in December 2004 (score: 100), while the lowest interest occurred in December 2016 (score: 16). As of May 2024, the interest score was 22, slightly lower than the previous year. Among the top 10 regions with the highest relative search volume, Poland ranked first, followed by the United States and Pakistan. In the United States, the peak interest in PKD was recorded in September 2010 (score: 100), and the lowest interest was observed in May 2020 (score: 28). The most recent data from May 2024 showed an interest score of 44. Missouri, Vermont, and Kansas were the top three states with the highest relative search volume for PKD.
Conclusion
There has been a decrease in online interest and awareness of PKD over the past two decades. The findings underscore the need for targeted interventions and campaigns to raise awareness about PKD, its symptoms, and the importance of early diagnosis and management. Nephrologists, patient advocacy groups, and policymakers should collaborate to develop strategies that effectively reach and educate the public about this disorder.